One that I wouldn't wish on anyone.
In fact, because I was so sick at first and I was told by the only doctor who was able to diagnose my condition that I most likely did NOT have a future and since my wife wanted to have children and I felt so uncertain about my life and it seemed to me very selfish to make her go through it (I had watched my mom go through my father's cancer and death), and to expect her to give up what she wanted in life - I released her.
She was NOT happy about it but I really thought I was actually doing her a very big favor. And, I heard she met someone, got married and had kids and hopefully was very happy.
Now, I didn't say that is what someone else should do so don't even think I am insinuating the same course of action because I am not.
And I MEAN that.
Hell, I was probably wrong but given the exact same situation, that I faced then, I'd probably do exactly the same thing because there most likely was no future with me.
Anyway, back to the subject matter: Living with someone who has Pancreatitis
The subject matter was again keywords people are using to find my site so there must be quite a few folks looking for answers. Hopefully I can supply some decent ones that make sense.
Living on Borrowed Time and Scared to Death
At any time, without much warning, they could suffer Acute Pancreatitis which results in necrotizing pancreatitis, organ failure and death.
Pancreatitis is a conditon that can turn ugly real fast.
I tried to put that out of my mind, but, it was and still is always there.
If you remember I have previously shared that I visited the ER on 7 different ocassions. None of those visits had even close to satisfactory results or a hint of quality care.
The most that EVER happened was ONE blood draw and a shot of demerol, which did NOTHING to decrease the pain. Now ...
When I am sitting on the edge of the ER bed, leaning over, holding my guts in, sweating profusely, and panting like a damn dog from pain because there was no way I could lay down, hell I couldn't even sit still, you would think any moron could determine there was a need for more tests.
So, if your someone is receiving the same quality care I did (that was sarcastic) you need to understand that even if they portray an outside appearance of courage, they are probably scared to death.
That fear doesn't leave simply because the pain subsides.
Your spouse, child or significant other, deep down most likely has a very large feeling of impending doom. Even if they receive quality care they are probably in fear of the next episode and their uncertain future.
If they suffer from complications it is going to be that much worse.
They May Not Want to Be a Burden
They may not want to inconveinence you by asking you to cook them seperate meals from the rest of the family and so they eat what the family eats which is something that will make their pancreas very upset, probably cause more damage, even end their life.
I can't stress that enough so I am going to say it again ...
Most people are much nicer than me. And so when asked if something is ok for dinner (or breakfast or lunch), especially if they love it, they will most likely say: "you bet", eat it and suffer instead of telling you it isn't a good thing for them.
That is WHY, if you love them, you need to know exactly what a Pancreatitis victim should and should not eat. So study my Pancreatitis Diet because it means the difference between your loved one suffering, maybe dying, or living to enjoy more happy memories with you.
Now I am gonna be blunt.
Pay strict attention to my diet regimen.
I haven't written this blog to make money or become famous.
I am simply sharing what has actually worked for me and allowed me to become and stay pain free for the last 16 years except for ONE 3 week period when I was sicker than a dog because I poisoned myself with pork intestines. I did NOT read the label on the turkey sausage as well as I should have. The TURKEY sausage was in "pork casings" and I paid dearly.
If you listen to most doctors, nutritionists, or people on the web who have the condition and are not pain free you are going to keep your loved one suffering, I guarantee it.
I'm a bonafide walking-talking, pain free Chronic Pancreatitis victim and I can vehmently tell you that a strict Pancreatitis diet is absolutely imperative and if you vary from what I share with you on the subject of diet, you are basically poisoning your loved one.
How is that for blunt.
Guess what it ain't over yet cuz I ain't through.
I couldn't careless what doctors say in this regard.
I have read diet information on medical sites that make me cringe!
If people who suffer from Pancreatitis follow the food recommendations of most doctors and patients I have run across on the web it is no frickin' wonder they are still sick and in pain and damn lucky they aren't dead yet.
The NEXT point I want to make is:
If they aren't hungry - don't push food on them!
Loss of appetite is a BIG signal in Pancreatitis.
What it basically means is that the patient's pancreas is not in a good mood and doesn't wish to be disturbed!
Listen to the signal!
IF they are NOT hungry just let them be, don't make them feel bad because you spent hours cooking. It isn't their fault they aren't hungry or not feeling well, in fact, it may be yours because you make them feel they have to eat!
This use to happen to me ALL the time.
So you cooked a great meal.
So it took you hours.
I'm sorry, they are sorry, but get over it, let them be or you are gonna make them sicker than they already are.
For now I have run out of things to say so ...
Leave me a comment and show me you are still alive!